Your Unmet Needs
Gaps exist throughout health services across the world, and similar issues come up from one country to the next.
Gaps are where the provision of treatment or rehabilitation don’t meet the needs or desires of the patient or their family.
Many of us are only too aware of the outcomes such as:
- Relationships falling apart and loss of family
- Loss of career or inability to return to education
- Dependency on welfare benefits which often don’t support needs
- Financial loss due to vulnerability – no legal help
- Legal issues – unable to find a lawyer or get help with a compensation claim
- Deterioration of health
- Lost ‘golden window of opportunity’ for spontaneous recovery
- Diagnosis not given
- Information not given – people don’t know what to expect or when to get more help
- No follow-up appointment given – people unaware they need or could get help
- Medical tests not carried out – no scan or neurological assessment
- Long waiting times to see specialists
- Losing interest or meaning – loss of a sense of purpose
- Untreated symptoms
- Loss of friends
- Loss of independence
- Loss of confidence – decision making
- No case manager or social worker support – difficulty with learning to accept help
Making a Difference
To make a difference, to bring real change, we need the data to support the existence of these and many other rehabilitation gaps.
We do this by providing evidence of where problems exist, what they exactly are, and how many people are affected.
The experts providing services want the best for their patients. While some changes can be made through client feedback, education, and increasing awareness, there are often financial hurdles to overcome before systems and protocols can be updated.
The provision of that evidence is where you come in; we need you to help us amass the data.
Using the data
We accomplish change by working together. Your ideas and input are crucial and valuable. Together we can show how prevalent each unmet need is, and how, by providing more and improved services, we can reduce or eliminate many unmet needs.
There are health, social, and economical benefits which can be met by doing this.
By working with research experts, we will compile a peer-reviewed academic paper for publication.
The NIHR – Brain Injury MedTech Co-operative has an ‘Unmet Needs Directory.’
If you go to the link you will be able to access The Unmet Needs Directory brochure, and will also be able to register for healthcare involvement and technology evaluation (RHITE) in the bottom right corner.