December 16, 2015 A Facebook Community Page Post that carries an important message – just as much today as it did in 2015!
· The majority of brain injury survivors suffer unnecessarily because of one thing – Lack of Awareness!
Given that the World Health Organisation estimate there are approximately one BILLION people living with neurological conditions there is a very strong chance that a survivor will touch your life.
They turn to their doctor and their doctor doesn’t understand, so people are pushed away and go without treatment and support.
Without treatment, brain injury can manifest into a disease-like state that is linked to Parkinson’s Disease, Motor Neurone Disease, Alzheimer’s Disease, Frontal Lobe Dementia, CTE.
Without medical support, people turn to their families and friends, but they don’t understand either and eventually unwitting neglect can turn into abandonment and isolation.
They venture out and people in shops look at them as though they are crazy when they ask for fish in a post office.
They end up in legal battles and the Judge takes no account of their disabilities and punishes them for not understanding.
They end up in trouble with the law because damage to the frontal lobes can sometimes cause a loss of control over emotions and behaviour.
They are vulnerable and some people take advantage of this and abuse them, physically, emotionally, psychologically and financially.
Their employers don’t take their disabilities into account and sack them. New employers won’t give them the time of day.
Would you want this to be you?
Would you want to live in a world where everyone rejects you constantly, day-in-and-day-out, often for years on end – even decades? A lack of education and information at the acute stage can lead to misjudgement and misunderstanding.
No! And you wouldn’t want to live with a brain injury either.
Sometimes there is no external wound to see – there is often no physical disability for you to be able to notice that someone needs your help.
If someone said to you, ‘I have a brain injury and I need help,’ would you shirk away or feel confident to know how to adjust your thinking enough to help?
All you need to know is that brain injury is most often an invisible disability. It doesn’t ‘catch’ and we are perfectly normal people locked beneath a bizarre spectrum of cognitive and executive disabilities (thinking and skills). We aren’t able to work things out the way you do and we often lose so much knowledge that we are literally learning all over again from scratch.
All that we ask is that you have just this much awareness because you can make the world we live in totally different from how it currently is.
Brain Injury is a Chronic Medical Condition!
A Traumatic Brain Injury TBI is an event followed by a disease-like cascade of progressively destructive secondary mechanisms.(1)
(1) Neuro Trauma 18 01 Molecular aspects of TBI by Ciaran Scott Hill from Instant Help on Vimeo Ciaran Scott Hill, Neurosurgery Registrar & Honorary Senior Lecturer, London
Further reference: PubMed Masel BE, DeWitt DS. Traumatic brain injury: a disease process, not an event. J Neurotrauma. 2010 Aug;27(8):1529-40. doi: 10.1089/neu.2010.1358. PMID: 20504161.
Thank you for listening and learning today!